Critical Knowledge Forum: Facing the Pandemic With (A Lot) of Data: The National Covid Cohort Collaborative
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The pandemic raises many difficult questions about COVID-19 as a new disease, such as: who is infectious, who may need hospital care and at what level, what are the key risk factors, what are the best prognostic indicators, what are best practices for ethical resource allocation, and which drugs are the most viable candidates for patients.
To address these challenges, the National Center for Data to Health (CD2H) and NCATS rapidly created a national enclave to house COVID-19 clinical data: the National COVID Cohort Collaborative (N3C). The regulatory, data, and analytical challenges have been tremendous; as has been the deep collaboration and innovation across the nation. The N3C Enclave houses the largest limited dataset in US history, with over 3M patients in a fully provenanced, reproducible, and attributable collaborative analytical platform. The N3C has already begun to transform how we perform global research as a nation.
About the Speaker
Melissa Haendel
Melissa Haendel is the Director of the Center for Data to Health (CD2H) at Oregon Health & Science University, and the Director of Translational Data Science at Oregon State University. Her background is molecular genetics and developmental biology as well as translational informatics, with a focus over the past decade on open science and semantic engineering. Dr. Haendel’s vision is to weave together healthcare systems, basic science research, and patient-generated data through the development of data integration technologies and innovative data capture strategies. Dr. Haendel’s research has focused on the integration of genotype-phenotype data to improve rare disease diagnosis and mechanism discovery. She also leads and participates in international standards organizations to support improved data sharing and utility worldwide.
For more information, please contact:
Cara Terzulli
cterzulli@adelphi.edu
Violeta Ilik
vilik@adelphi.edu